Please check back here soon for newsletters.
You can also visit our Facebook page for more information.
www.facebook.com/Cystinosis-Support-Group-Australia/
New Research that our Australian and New Zealand families can take part in. Please see below.
www.facebook.com/amandadunsdon/posts/10154466395767043
2017 Natalie's Wish Video - One Wish. One World. One Hope.
Cystinosis Research Foundation
Wishing Amanda Fenn and family from NSW all the best as they attend the Day of Hope cystinosis conference in the USA. Please send our best wishes to all the families you meet as well as the doctors and researchers that are working so hard for our community world wide.
Feel free to post photos Amanda .
Y a t il des enfants ou adultes atteint de cystinose qui on déjà fait des hémorragie intestinale ?
An interesting link to an article about Gabbie (a little girl with Cystinosis) and her families work to raise awareness and find a cure.