We’ve collated some of the leading websites from around the world that deal with topics relating to the treatment of Cystinosis and and support for families living with the condition.
The Cystinosis Foundation, France
Cystinose-Selbsthilfe (Cystinosis Self Help, Germany)
CARE: Cystinosis Awareness and Research Effort
Canadian based charity supporting research to improve the quality of life for Cystinosis patients.
Cystinosis Foundation USA
The Cystinosis Foundation USA, supporting communities and research.
Cystinosis Research Network
A USA based charity for Cystinosis research.
Cystinosis Research Foundation
Also known as “Natalie’s Wish”, a USA based charity supporting research and education.
Mexican Association of Cystinosis
An association which helps support patients with Cystinosis in Mexico and Latin America.